In the year before a person’s death, half of family caregivers of someone with Alzheimer’s disease or other dementia reported spending at least 46 hours per week providing care–59% of these caregivers felt that they were “on duty” 24-hours a day.
Schulz R, Mendelsohn A, Haley W, et al. End-of-Life Care and the Effects of Bereavement on Family Caregivers of Persons with Dementia. N Engl J Med. 2003; 349(20): 1936-42. http://content.nejm.org/cgi/content/abstract/349/20/1936