For families of loved ones with dementia, their out-of-pocket spending in the last 5 years before death was $61,522 compared to $34,068 without dementia. Informal costs were $83,022 for people with dementia, compared with $38,272 for those without.
The Burden of Health Care Costs for Patients with Dementia in the Last 5 Years of Life. 2015; doi:10.7326/M15-0381. http://annals.org/article.aspx?articleid=2466364&resultClick=3